The right to ignorance of health data as a specific expression of autonomy

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Published: Jul 6, 2022
DOI: https://doi.org/10.12681/ethiki.30740
Keywords:
Data; Kantian Ethics; Right; Autonomy; Health Data; Self-determination; Sensitive Data; Medical Information
Mary Katarti
Abstract

This article examines the ethical and legal dimensions of the "right to ignorance" regarding personal health data, framing it as a vital component of individual autonomy. The author argues that because health information is classified as sensitive personal data, individuals should have the prerogative to decide what they wish to know about their own medical status to protect their social and moral well-being. Drawing heavily on Kantian ethics, the paper explores whether the demand for ignorance can be justified through the principle of self-determination or if it conflicts with the duty of rational self-care. The study concludes by emphasizing that respecting a person's personality requires acknowledging their perspective as independent and non-replaceable, which includes the right to remain unaware of certain medical information.

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