Raising one or more children with autism: The social class dimension
Published:
Dec 15, 2017
Keywords:
Autism Motherhood Mental health Quality of life Social class Qualitative study
Abstract
The focus of the present qualitative study is the contextualization of the lived experience of mothers raising one or more children with autism, examining specific aspects, the real socio-economic life circumstances and their role on mothers’ access to resources, their mental health and overall quality of life. The initial main findings generated from the qualitative analysis of the interviews collected from 83 mothers from contrasting/opposite socio-economic positions, working class and economically privileged, are presented across four thematic nodes: a) the type and quality of the diagnostic experience, b) the quality of marriage, the support networks and social responses, c) the motherhood role and coping skills, and d) the explanatory models for the causation of autism and the experiences from “therapeutic pathways”. The qualitative analysis of the empirical material illustrated that factors directly relevant to the context of this experience, such as social position and access to resources, exert a critical influence on the biographic trajectories of these mothers, their psychological state and their overall quality of life.
Article Details
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Ζήση Α., Μαυροπούλου Σ., & Δαρδάνη Χ. (2017). Raising one or more children with autism: The social class dimension. Psychology: The Journal of the Hellenic Psychological Society, 21(4), 437–452. https://doi.org/10.12681/psy_hps.23511
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- Vol. 21 No. 4 (2014)
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- RESEARCH PAPERS
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References
ailing Moh, T.& Magiati, i. (2012). Factors associated
with parental stress and satisfaction during the
process of diagnosis of children with autism spectrum
disorders. Research in Autism Spectrum Disorders,
(1), 293-303.
american Psychiatric association. (2013). Diagnostic
and statistical manual of mental disorders (5th
ed.). Washington, DC: author.
Benson, P. R. (2012). Network characteristics, perceived
social support, and psychological adjustment
in mothers of children with autism spectrum
disorder. Journal of Autism and Developmental
Disorders, 42, 2597-2610.
Benson, P. R., & Karlof, K. L. (2009). anger, stress proliferation,
and depressed mood among parents of
children with autism: a longitudinal replication.
Journal of Autism and Developmental Disorders,
, 350-362.
Benson, P. R., & Kersh, J. (2011). Marital quality and
psychological adjustment among mothers of children
with autism: cross-sectional and longitudinal
relationships. Journal of Autism and Developmental
Disorders, 41(12), 1675-85.
Beurkens, N. M., hobson, J. a., & hobson, R. P.
(2013). autism severity and qualities of parentchild
relations. Journal of Autism and Developmental
Disorders, 43(1), 168-78.
Boyd, B. (2002). Examining the relationship between
stress and lack of social Support in mothers of
children with autism. Focus on Autism and Other
Developmental Disabilities, 17, 208-215.
Bromley, J., hare, J. D., Davison, K., & Emerson, E.
(2004). Mothers supporting children with autistic
spectrum disorders. Autism, 8, 409-423.
Braun, V., & Clarke, V. (2006). Using thematic analysis
in psychology. Qualitative Research in Psychology,
(2), 77- 101.
Brooks, J., McCluskey, S., Turley, E., & King, N.
(2015).The utility of Template analysis in qualitative
psychology research.Qualitative Research in
Psychology, 12, 202-222.
Brown, h. K., Ouellette-Kuntz, h., hunter, D., Kelley,
E., & Cobigo, V. (2012). Unmet needs of families
of school-aged children with an autism spectrum
disorder. Journal of Applied Research in Intellectual
Disabilities, 25(6), 497-508.
Carter, a.S., Martinez-Pedraza, F.L., & Gray, S.a.
(2009). Stability and individual change in depressive
symptoms among mothers raising young
children with aSD: Maternal and child correlates.
Journal of Child Psychology, 65, 1270-1280.
Chamak, B., Bonniau, B., Oudaya, L., & Ehrenberg, a.
(2011). The autism diagnostic experiences of
french parents. Autism, 15(1), 83-97.
Crane, L., Chester, W. L., Goddard, L., henry, a. L.,
& hill, L. E. (2015). Experiences of autism diagnosis:
a survey of over 1000 parents in the United
Kingdom. autism, 1-10.
Dale, E., Jahoda, a., & Knott, F. (2006). Mothers’ attributions
following their child’s diagnosis of autistic
spectrum disorder: exploring links with maternal
levels of stress, depression and expectations
about their child’s future. Autism, 10(5), 463-79.
Dardas, L.a., & ahmad, M. M. (2015). Coping strategies
as mediators and moderators between
stress and quality of life among parents of children
with autistic disorder. Stress and Health,
(1), 5-12.
Dunn, M. E., Burbine, T., Bowers, C. a., & Tantleff-
Dunn, S. (2001). Moderators of stress in parents
u Αναστασία Ζήση, Σοφία Μαυροπούλου και Χριστίνα Δαρδάνη
of children with autism. Community Mental Health
Journal, 37, 39-52.
Emerson, E. (2003). Mothers of children and adolescents
with intellectual disability: Social and economic
situation, mental health status, and the selfassessed
social and psychological impact of the
child’s difficulties. Journal of Intellectual Disability
Research, 47, 385-399.
Gill, J., & Liamputtong, P. (2011). Being the mother
of a child with asperger’s Syndrome: Women’s
experiences of stigma. Health Care for Women International,
, 708-22.
Gray, D. E. (1994). Lay conceptions of autism: Parents’
explanatory models. Medical anthropology,
(1-4), 99-118.
Gray, D. E. (1997). high functioning autistic children
and the construction of “normal family life”. Social
Science & Medicine, 44(8), 1097-1106.
Green, a. V. (2007). Parental experience with treatments
for autism. Journal of Developmental and
Physical Disabilities, 19(2), 91-101.
Greenberg, J. S., Seltzer, M. M., Krauss, M. W., Chou,
R. J., & hong, J. (2004). The effect of quality of the
relationship between mothers and adult children
with schizophrenia, autism or Down Syndrome on
maternal wellbeing: The mediating role of optimism.
American Journal of Orthopsychiatry, 74,
–25.
harrington, J. W., Patrick, P. a., Edwards, K. S., &
Brand, D. a. (2006). Parental beliefs about autism:
implications for the treating physician. Autism,
(5), 452-462.
hastings, R.P. (2003). Child behaviour problems and
partner mental health as correlates of stress in
mothers and fathers of children with autism. Journal
of Intellectual Disability Research, 47, 231-
hastings, R. P., & Brown, T. (2002). Behavior problems
of autistic children, parental self-efficacy and
mental health. American Journal on Mental Retardation,
, 222–232.
hastings, R., Kovshoff, h., Brown, T., Ward, N. J., Espinosa
F. D., & Remington, B. (2005). Coping
strategies in mothers and fathers of preschool and
school-age children with autism. Autism, 9, 377-
hastings, R. P., Kovshoff, h., Ward, N. J., Espinosa,
F., Brown, T., & Remington, B. (2005). Systems
analysis of stress and positive perceptions in
mothers and fathers of pre-school children with
autism. Journal of Autism and Developmental Disorders,
(5), 635-644.
heiman, T. (2002). Parents of children with disabilities:
Resilience, coping, and future expectations. Journal
of Developmental and Physical Disabilities, 14,
- 171.
helitzer, D. L., Cunningham-Sabo, L. D., VanLeit, B., &
Crowe, T. K. (2002). Perceived changes in self-image
and coping strategies of mothers of children
with disabilities. Occupational Therapy Journal of
Research, 22, 25-33.
ho, S. W. h., yi1, h., Griffiths, S., Chan, F. y. D., &
Murray, S. (2014). ‘Do it yourself’ in the parent–
professional partnership for the assessment and
diagnosis of children with autism spectrum conditions
in hong Kong: a qualitative study. Autism,
(7) 832– 844.
hock, R., & ahmedani, B. K. (2012). Parent perceptions
of autism severity: exploring the social ecological
context. Disability and Health Journal, 5(4),
- 304.
howlin, P. (1998). Psychological and educational
treatments for autism. Journal of Child Psychology
and Psychiatry, 39(03), 307-322.
ingersoll, B., & hambrick, D.Z. (2011). The relationship
between the broader autism phenotype, child
severity, and stress and depression in parents of
children with autism spectrum disorders. Research
in Autism Spectrum Disorders, 5, 337-344.
Jones, L., hastings, R. P., Totsika, V., Keane, L., &
Rhule, N. (2014). Child behavior problems and
parental well-being in families of children with
autism: the mediating role of mindfulness and acceptance.
American Journal on Intellectual and
Developmental Disabilities, 119(2), 171-185.
Κάλλας, ι. (2015). Θεωρία, μεθοδολογία και ερευνη-
τικές υποδομές στις κοινωνικές επιστήμες. αθήνα:
Κριτική.
Kersh, J., hedvat, T. T., hauser-Cram, P., & Warfield,
M. E. (2006). The contribution of marital quality to
the well-being of parents of children with developmental
disabilities. Journal of Intellectual Disability
Research, 50, 883-893.
Khanna, R., Madhavan, S. S., Smith, M. J., Tworek, J.
h., Patrick, C., & Becker-Cottrill, B. (2012). assessment
of health-related quality of life among
primary caregivers of children with autism spectrum
disorders. Journal of Autism and Developmental
Disorders, 41, 1214-1227.
Kleinman, a. (1980). Patients and healers in the con-
Μεγαλώνοντας παιδί/ά στο φάσμα του αυτισμού: Η ταξική διάσταση u 449
text of culture: An exploration of the borderland between
anthropology, medicine, and psychiatry
(Vol. 3). University of California Press.
Lecavalier, L., Leone, S., & Wiltz, J. (2006). The impact
of behaviour problems on caregiver stress in
young people with autism spectrum disorders.
Journal of Intellectual Disability Research, 50(3),
-183.
Lee, G.K., Lopata, C., Volker, M.a., Thormeer, M.L., Nida,
R.E., Toomey, J.a., Chow, S.y., & Smerback,
a.M. (2009). health-related quality of life of parents
of children with high-functioning autism spectrum
disorders. Focus on Autism and Other Developmental
Disabilities, 24, 227-239.
Lovejoy, M. C., Graczyk, P. a., O’hare, E., & Neuman,
G. (2000). Maternal depression and parenting behavior:
a meta-analytic review. Clinical Psychology
Review, 20(5), 561-592.
Mavropoulou, S., Zissi, a., & Dardani. C. (2014). Social
inequalities and mental distress of mothers raising
children with autism: A qualitative approach (oral
presentation). 5th Qualitative Research on Mental
health, 2-4.9.2014, Chania, Greece.
McCubbin, h.i., & Patterson, J.M. (1981). Family
stress theory: The aBCX and double aBCX models.
in: h.i. McCubbin & J.M. Patterson (Eds.),
Systematic Assessment of Family Stress and Coping:
Tools for Research, Education, and Clinical Intervention
(pp. 7-15). St. Paul: University of Minnesota,
Family Social Science.
Mugno, D., Ruta, L., D’ arrigo, V., & Mazzone, L.
(2007). impairment of quality of life in parents of
children and adolescents with pervasive developmental
disorder. Health and Quality of Life Outcomes,
(1), 22.
Newland, R.P., Crnic, K.a., Cox, M.J., & Mills-Koonce
W.R. (2013). The family model stress and maternal
psychological symptoms: Mediated pathways
from economic hardship to parenting. Journal of
Family Psychology, 27(1), 96-105.
Orsmond, G. i., Seltzer, M. M., Greenberg, J. S., &
Krauss, M. W. (2006). Mother-child relationship
quality among adolescents and adults with
autism. American Journal of Mental Retardation,
, 121-137.
Patterson, J.M. (1988). Chronic illness in children and
the impact on families. in: C.Chilman, E. Nunnally,
& E. Cox (Eds), Chronic illness and disability.
Beverly hills: Sage.
Rocque, B. (2010). Mediating self
construction and maintenance of identity by mothers
of children labeled with autism spectrum disorder.
Disability and Society, 25(4), 485-497.
Ryan, S., & Runswick- Cole, K. (2008). Repositioning
mothers: mothers, disabled children and disability
studies. Disability and Society, 23(3), 199-210.
Schaaf, R. C., Toth-Cohen, S., Johnson, S. L., Outten,
G., & Benevides, T. W. (2011). The everyday routines
of families of children with autism: Examining
the impact of sensory processing difficulties on
the family. Autism, doi: 1362361310386505.
Seymour, M., Wood, C., Giallo, R., & Jellett, R. (2013).
Fatigue, stress and coping in mothers of children
with an autism spectrum disorder. Journal of
Autism and Developmental Disorders, 43(7), 1547-
Shearn, J., & Todd, S. (2000). Maternal employment
and family responsibilities: the perspectives of
mothers of children with intellectual disabilities.
Journal of Applied Research in Intellectual Disabilities
, 109–131.
Siman-Tov, a., & Kaniel, S. (2011). Stress and personal
resource as predictors of the adjustment of
parents to autistic children: a multivariate model.
Journal of Autism and Developmental Disorders,
(7), 879-90.
Smith, L. E., hong, J., Seltzer, M. M., Greenberg, J.
S, almeida, D. M., & Bishop, S. L. (2010). Daily experiences
among mothers of adolescents and
adults with autism spectrum disorder. Journal of
Autism and Developmental Disorders, 40, 167-
Stoner, B. J., & Stoner, R. C. (2014). Career disruption:
the impact of transitioning from a full-time career
professional to the primary caregiver of a
child with autism spectrum disorder. Focus on
Autism and Other Developmental Disabilities, doi:
1177/1088357614528798
Tunali, B., & Power, T. G. (2002). Coping by redefinition:
Cognitive appraisals in mothers of children
with autism and children without autism. Journal
of Autism and Developmental Disorders, 32, 25-34.
Weiner, B. (1985). an attributional theory of achievement
motivation and emotion. Psychological Review,
(4), 548.
Weiss, M.J. (2002). hardiness and social support as
predictors of stress in mothers of typical children,
children with autism, and children with mental retardation.
Autism, 6, 115-130.
Weiss, J. a., Wingsiong, a., & Lunsky, y. (2014). Defin-
u Αναστασία Ζήση, Σοφία Μαυροπούλου και Χριστίνα Δαρδάνη
ing crisis in families of individuals with autism
spectrum disorders. Autism, 18(8), 985-995.
Weitlauf , a. S., Vehorn, a. C., Taylor, J. L., & Warren,
Z. E. (2014). Relationship satisfaction, parenting
stress, and depression in mothers of children with
autism. Autism, 18(2), 194- 8.
Werner, S., & Shulman, C. (2013). Subjective well-being
among family caregivers of individuals with
developmental disabilities: the role of affiliate stigma
and psychosocial moderating variables. Research
in Developmental Disabilities, 34(11),
- 14.
White, S. E., McMorris, C., Weiss, J. a., & Lunsky, y.
(2012). The experience of crisis in families of individuals
with autism spectrum disorder across
the lifespan. Journal of Child and Family Studies,
(3), 457-465.
Woodgate, R., ateah, C., & Secco, L. (2008). Living in
a world of our own: The experience of parents
who have a child with autism. Qualitative Health
Research, 18, 1075- 1083.
Wright, O. E. (1985). Classes. London: Verso.
yamada, a., Suzuki, M., Kato, M., Suzuki, M., Tanaka,
S., Shindo, T., Taketani, K., akechi, T., & Furukawa,
T.a. (2007). Emotional distress and its
correlates among parents of children with pervasive
developmental disorders. Psychiatry and Clinical
Neurosciences, 61, 651-657.
Zablotsky, B., anderson, C., & Law, P. (2013). The association
between child autism symptomatology,
maternal quality of life, and risk for depression.
Journal of Autism and Developmental Disorders,
(8), 1946-55.
Ζήση, α. & μαυροπούλου, Σ. (2013). ποιότητα ζωής
και ψυχική υγεία μητέρων που μεγαλώνουν παι-
δι/ά με αυτισμό: Επισκόπηση ευρημάτων. ψυχο-
λογία, 20(4), 413- 428.
Zissi, a. (2014). A theoretical and research strategy to
study inequalities in mental health in contemporary
Greece (oral presentation). 5th Qualitative Research
on Mental health, 2-4.9.2014, Chania,
Greece.
