Nοητική ανεπάρκεια και στρες των μητέρων: Το παράδειγμα της Ελλάδας
Δημοσιευμένα:
Dec 15, 2017
Λέξεις-κλειδιά:
Μέτρια νοητική ανεπάρκεια στρες μητέρων συννοσηρότητα Οικογενειακή ενδυνάμωση
Περίληψη
Έρευνες έχουν δείξει ότι οι γονείς παιδιών με νοητική ανεπάρκεια διακρίνονται από υψηλότερα επίπεδα άγχους σε σχέση με γονείς παιδιών τυπικής ανάπτυξης. Tρεις κύριες περιοχές πηγής γονεϊκού άγχους περιλαμβάνουν τη συννοσηρότητα της κατάστασης του παιδιού, τα γονεϊκά χαρακτηριστικά και τις καταστάσεις ζωής των γονέων. Ο σκοπός της παρούσας μελέτης ήταν η διερεύνηση των αντιλήψεων ελληνίδων μητέρων για τα χαρακτηριστικά των παιδιών τους με νοητική ανεπάρκεια και των συνθηκών της ζωής τους ως στρεσογόνους παράγοντες. η έρευνα διεξήχθη στη ρόδο. στην έρευνα συμμετείχαν πενήντα εννέα μητέρες με παιδιά που είχαν διαγνωσθεί με μέτρια νοητική ανεπάρκεια με και χωρίς συννοσηρότητα. Για τη συλλογή των δεδομένων χρησιμοποιήθηκαν συνεντεύξεις. Κύρια ευρήματα της έρευνας ήταν ότι το στρες ποικίλλει μεταξύ των μητέρων των παιδιών με νοητική ανεπάρκεια και ότι η συννοσηρότητα των παιδιών με νοητική ανεπάρκεια φαίνεται να είναι ο πιο σημαντικός στρεσογόνος παράγοντας για τις μητέρες. η υποστήριξη της οικογένειας θα πρέπει να βασίζεται στο μοντέλο εταιρικής σχέσης-ενδυνάμωσης. περαιτέρω έρευνα σχετικά με τις ανάγκες της οικογένειας των παιδιών με νοητική ανεπάρκεια είναι απαραίτητη στην ελλάδα, έτσι ώστε τα παιδιά να έχουν υποστήριξη σε όλη τη διάρκεια της ζωής τους.
Λεπτομέρειες άρθρου
- Πώς να δημιουργήσετε Αναφορές
-
Βουγιούκας Κ., Τζουριάδου Μ., Μενεξές Γ., Γκέκα Μ., & Μιχαλοπούλου Λ. .-. Ε. (2017). Nοητική ανεπάρκεια και στρες των μητέρων: Το παράδειγμα της Ελλάδας. Ψυχολογία: το περιοδικό της Ελληνικής Ψυχολογικής Εταιρείας, 21(4), 421–436. https://doi.org/10.12681/psy_hps.23510
- Τεύχος
- Τόμ. 21 Αρ. 4 (2014)
- Ενότητα
- ΕΜΠΕΙΡΙΚΕΣ ΕΡΓΑΣΙΕΣ
Αυτή η εργασία είναι αδειοδοτημένη υπό το Creative Commons Attribution-ShareAlike 4.0 International License.
Το περιοδικό ΨΥΧΟΛΟΓΙΑ έχει υιοθετήσει μία πολιτική Platinum open-access. Τα έξοδα υποβολής, επεξεργασίας ή δημοσίευσης των εργασιών καλύπτονται από την Ελληνική Ψυχολογική Εταιρεία. Τα πνευματικά δικαιώματα των δημοσιευμένων εργασιών προστατεύονται από την άδεια 'Creative Commons Attribution-ShareAlike 4.0 International'. Οι Συγγραφείς διατηρούν τα Πνευματικά Δικαιώματα και χορηγούν στο περιοδικό το δικαίωμα της πρώτης δημοσίευσης. Η άδεια αυτή επιτρέπει σε τρίτους, να χρησιμοποιούν την εργασία σε οποιαδήποτε μορφή, με την προϋπόθεση της διατήρησης των διατυπώσεων που προβλέπονται στην άδεια σχετικά με την αναφορά στον αρχικό δημιουργό και την αρχική δημοσίευση στο περιοδικό ΨΥΧΟΛΟΓΙΑ. Επιπλέον, κάθε διανομή της εργασίας οφείλει να γίνεται με τους ίδιους όρους διανομής, δηλαδή με την ίδια άδεια Creative Commons.
Λήψεις
Τα δεδομένα λήψης δεν είναι ακόμη διαθέσιμα.
Αναφορές
AAIDD, (2008). American Association on Intellectual
and Developmental Disabilities.
Abbeduto, L., Seltzer, M.M., Shattuck, P., krauss,
M.W., Orsmond, G. & Murphy, M.M. (2004). Psychological
well-being and coping in mothers of
youths with autism, down syndrome, or fragile x
syndrome. American Journal on Mental Retardation
, 237-254.
Abidin, R.R. (1995). Parenting Stress Index. Odessa:
Psychology Press.
Argyrakouli, E. & zafiropoulou, M. (2003). Self-esteem
of Greek mothers of children with intellectual disabilities.
International Journal of Disability, Development
and Education, 50, 181-195.
Beckman, P.J. (1983). Influence of selected child characteristics
on stress in families of handicapped infants.
American Journal of Mental Deficiency, 88,
-156.
cain, D.S. & combs-Orme, T. (2005). Family structure
effects on parenting stress and practices in the
African American Family. Journal of Sociology and
Social Welfare, 32, 19-40.
cameron, S.J., Dobson, L.A. & Day, D.M. (1991).
Stress in parents of developmentally delayed and
non-delayed preschool children. Canada’s Mental
Health, 39, 13-17.
cortina. J. & nouri, h. (2000). Effect Size for ANOVA
Designs. Thousand Oaks: Sage Publications, Inc.
cramm, J.M & nieboer, A.P. (2011). Psychological
well-being of caregivers of children with intellectual
disabilities: using parental stress as a mediating
factor. Journal of Intellectual Disabilities, 15,
-113.
Daire, A.P, casado-kehoe, M. & Lin, c.h. (2005). coping
responses and emotional distress in fathers of
children with special needs and “redreaming’ as a
creative intervention. Journal of Creativity in Mental
Health, 1, 253-271.
Davis, n.O. & carter, A.S. (2008). Parenting stress in
mothers and fathers of toddlers with autism spectrum
disorders: Associations with child characteristics.
Journal of Autism and Developmental Disorders,
, 1278-1291.
Dervishaliaj, E. (2013). Parental stress in families of
children with disabilities: a literature review. Journal
of Educational and Social Research, 3, 579-
ELSTAT (2011). Greek National Statistics. Greek Population
census 2011.
Emerson, E. (2003). Mothers of children and adolescents
with intellectual disability: social and economic
situation, mental health status, and the self
assessed social and psychological impact of the
child’s difficulties. Journal of Intellectual Disability
Research, 47, 385-399.
Estes, A., Munson, J., Dawson, G., koehler, E., zhou
x-h. & Abbott, R. (2009). Parenting stress and
psychological functioning among mothers of
preschool children with autism and developmental
delay, Autism, 13, 375-387.
Everitt, B. (1993). Cluster Analysis. London: Edward
Arnold.
Eyberg, S., Boggs, S.R. & Rodriguez, c.M. (1992). Relationships
between maternal parenting stress
and child disruptive behavior. Child and Family
Behavior Therapy, 14, 1-9.
Feldman, M.A, hon M.L & Walton-Allen, n. (1997).
Stress in mothers with intellectual disabilities.
Journal of Child and Family Studies, 6, 471-485.
Ferguson, n. & Watt, J. (1980). The mothers of children
with special education needs. Scottish Educational
Review, 12, 21-31.
Frey, k.S, Greenberg, M.T & Fewell, R.R. (1989).
Stress and coping among parents of handicapped
children: a multi-dimensional approach.
American Journal on Mental Retardation, 94, 240-
Friedrich, W.n, Wilturner, L.T. & cohen, D.S. (1985).
coping resources and parenting mentally retarded
children. American Journal of Mental Deficiency,
, 130-139.
Gallagher, S., Phillips, A.c, Oliver, c. & carroll, D.
(2008). Predictors of psychological morbidity in
parents of children with intellectual disabilities.
Journal of Pediatric Psychology, 33, 1129-1136.
Georgas, J, christakopoulou, S, Poortinga, y, Goodwin,
R, Angleitner, A & charalambous, n. (1997).
The relationship of family bonds to family structure
u Constantinos Vouyoukas, Maria Tzouriadou, Georgios Menexes, Maria Geka and Lito-Eleni Michalopoulou
and function across cultures. Journal of Cross-
Cultural Psychology, 28, 303-319.
Georgas, J., (1988). An ecological and social crosscultural
model: The case of Greece. In: J.W. Berry,
S, h. Irvine & E.B hunt (Eds.). Indigenous Cognition:
Functioning in Cultural Context (pp. 105-123).
Dordrecht: Martinus nijhoff.
Greenacre, M.J. (1993). Correspondence Analysis in
Practice. London: Academic Press.
Gupta, V. B. (2007). comparison of parenting stress in
different developmental disabilities. Journal of Developmental
and Physical Disabilities, 19, 417-425.
hair, J. & Black, W. (2000). cluster Analysis. In L.
Grimm and P. yarnold (Eds), Reading and Understanding
More Multivariate Statistics (pp. 147-205).
Washington: Dc: American Psychological Association.
halkidi, M., Batistakis, y. and Vazirgiannis, M. (2001).
On clustering validation techniques. Journal of intelligent
Information Systems, 17, 107-145.
hassall, R., Rose, J. & McDonald, J. (2005). Parenting
stress in mothers of children with an intellectual disability:
the effects of parental cognitions in relation
to child characteristics and family support. Journal
of Intellectual Disability Research, 49, 405-418.
hastings, R.P. & Beck, A. (2004). Practitioner review:
stress intervention for parents of children with intellectual
disabilities. Journal of Child Psychology
and Psychiatry, 45, 1338-1349.
holroyd, J. (1974). The questionnaire on resources
and stress: an instrument to measure family response
to a handicapped family member. Journal
of Community Psychology, 2, 92-94.
Johnson, B.S. (2000). Mothers’ perceptions of parenting
children with disabilities. The American
Journal of Maternal/Child Nursing, 25, 127-132.
Johnston, c., hessl, D., Blasey, c., Eliez, S, Erba, h.,
Dyer-Friedman, J. et al. (2003). Factors associated
with parenting stress in mothers of children
with fragile x syndrome. Developmental and Behavioral
Pediatrics, 24, 267-275.
kartasidou, L., Dimitriadou, I., Pavlidou, E., &
Varsamis, P. (2013). Independent living and interpersonal
relations of individuals with intellectual
disability: the perspective of support staff in
Greece. The International Journal of Learner Diversity
and Identities, 19, 59-73.
kazak, A.E. (1987). Families with disabled children:
stress and social networks in three samples. Journal
of Abnormal Child Psychology, 15, 137-146.
kerr, S.M. & McIntosh, J.B. (2000). coping when a
child has a disability: exploring the impact of parent-
to-parent support. Child: Care, Health and Development,
, 309-322.
khamis, V. (2007). Psychological distress among parents
of children with mental retardation in the United
Arab Emirates. Social Science & Medicine, 64,
-857.
konstantareas, M.M. & homatidis S. (1989). Parental
perception of learning-disabled children’s adjustment
problems and related stress. Journal of Abnormal
Child Psychology, 17, 177-186.
konstantareas, M.M., Papageorgiou, V. (2006). Effects
of temperament, symptom severity and level of
functioning on maternal stress in Greek children
and youth with ASD. Autism, 10, 593-607.
Lazarus R.S. & Folkman S. (1984). Stress Appraisal
and Coping. new york: Springer.
Law 2817 (2000). Education of People with Special Educational
Needs. Athens: Greek Ministry of Education.
Lingard, L, Albert, M & Levinson, W. (2008). Grounded
theory, mixed methods, and action research,
British Medical Journal, 337, 459-461.
Luckasson R., Borthwick-Duffy S., Buntinx W., coulter
D.L., craig E.M., Reeve, A. et al. (2002). Mental
Retardation: Definition, Classification and Systems
of Supports. Washington, Dc: American Association
on Mental Retardation.
Michos, M. c., Mamolos, A.P. Menexes, G. Tsatsarelis,
c.A, Tsirakoglou, V.M. & kalburtji, k.L. (2012). Energy
inputs, outputs and greenhouse gas emissions
in organic, integrated and conventional
peach orchards. Ecological Indicators, 13, 22-28.
Mcconachie, h. (1994). Implications of a model of
stress and coping for services to families of young
disabled children. Child: Care, Health and Development,
, 37-46.
Mehta, c. & Patel, R. (1996). SPSS Exact Tests 7.0 for
Windows. chicago: SPSS Inc.
Menexes, G. & Angelopoulos, St. (2008). Proposals
for the financing and development of Greek farms
based on a clustering method for categorical data.
EuroMed Journal of Business, 3, 263-285.
Michailidis, G. & de Leeuw, J. (1998). The gifi system
of descriptive multivariate analysis. Statistical Science,
, 307-336.
Minnes, P.M. (1988). Family resources and stress associated
with having a mentally retarded child. American
Journal on Mental Retardation, 93, 184-192.
Intellectual disability and mothers' stressors u 433
Mojena, R. & Wishart, D. (1980). Stopping rules for
Ward’s clustering method. In: COMPSTAT 1980
Proceedings, Physica-Verlag, pp. 426-432.
neece, c.L., Green, S.A. & Baker, B.L. (2012). Parenting
stress and child behavior problems: a
transactional relationship across time. American
Journal on Intellectual and Developmental Disabilities,
, 48-66.
Olsson, M.B. & hwang, c.P. (2001). Depression in
mothers and fathers of children with intellectual
disability. Journal of Intellectual Disability Research,
, 535-543.
Padeliadou, S. (1998). Time demands and experienced
stress in Greek mothers of children with
Down syndrome. Journal of Intellectual Disability
Research, 42, 144-153.
Peterson, G.W. & Mathieson, k. (2000). Understanding
parental stress: a family perspective. In: P.c
Mckenry & S.J. Price (Eds), Families & Change:
Coping with Stressful Events and Transitions (pp.
-93). Sage Publications, Thousand Oaks, cA.
Quine, L. & Pahl, J. (1991). Stress and coping in mothers
caring for a child with severe learning difficulties:
a test of Lazarus’ transactional model of coping.
Journal of Community and Applied Social Psychology,
, 57-70.
Saiti, A. & Mitrosili, E. (2005). Parental perception of
the education of their adolescent children: evidence
from Greek secondary education. Journal
of Career and Technical Education, 22, 19-30.
Saloviita. T., Italinna. M. & Leinonen, E. (2003). Explaining
the parental stress of fathers and mothers
caring for a child with intellectual disability: a double
ABcx model. Journal of Intellectual Disability
Research, 47, 300-312.
Sanders J.L. & Morgan S.B. (1997). Family stress and
adjustment as perceived by parents of children
with autism or Down syndrome. Implications for
Intervention. Child and Family Behavior Therapy,
, 15-32.
Schalock, R., Luckasson, R.A., Shogren, k.A., Borthwick-
Duffy, S., Bradley, V., Buntinx, W. h. et al.
(2007). The renaming of mental retardation: understanding
the change to the term intellectual
disability. Intellectual and Developmental Disabilities,
, 116-124.
Scott, B., Atkinson, L., Minto,n h. & Bowman, T.
(1997). Psychological distress of parents of infants
with Down syndrome. American Journal on Mental
Retardation, 102, 162-171.
Sharma, S. (1996). Applied Multivariate Techniques.
new york: John Wiley & Sons.
Spaans, A. & Van der kloot, W. (2004). Permucluster
0 User’s Guide. Leiden: Leiden University.
Taxidis, E.T, Menexes, G., Mamolos, A.P, Tsatsarelis,
c.A., Anagnostopoulos, c.D & kalburtji, k.L
(2015). comparing organic and conventional olive
groves relative to energy use and greenhouse gas
emissions associated with the cultivation of two
varieties. Applied Energy, 149, 117-124.
Tunali, B. & Power, T.G. (1993). creating satisfaction:
a psychological perspective on stress and coping
in families of handicapped children. Journal of
Child Psychology and Psychiatry, 34, 945-957.
Turner, D. W. (2010). Qualitative interview design: a
practical guide for novice investigators. The Qualitative
Report, 15, 754-760.
Tzouriadou M, kontopoulou-kokkinaki M. & Psoinos,
M. (2008). An inclusive early-intervention programme:
the cases of a native-born and an immigrant
preschooler. Paper Presented at Early Childhood
Intervention in Europe conference, 3-4
September 2008, kristiansand, norway.
US Department of Education, (1995). Seventeenth Annual
Report to Congress on the Implementation of
the Individuals with Disabilities Education Act
Vlachos, F., Stavroussi, P. & Pisina, A. (2012). handedness
distribution in children and adolescents
with genetic syndromes associated with intellectual
disability. Paper presented at the Sixth International
Conference on Special Education and Rehabilitation.
Belgrade, Serbia.
Van Riper, M., Ryff, c. & Pridham, k. (1992). Parental
and family well-being in families of children with
Down syndrome: a cooperative study. Research
in Nursing and Health, 15, 227-235.
Walker, L.S., Van Slyke, D.A. & newbrough, J.R.
(1992). Family resources and stress: a comparison
of families of children with cystic fibrosis, diabetes,
and mental retardation. Journal of Pediatric
Psychology, 17, 327-343.
Walton, W.T. (1993). Parents of disabled children
burn-out too: counseling parents of disabled children
on stress management. International Journal
for the Advancement of Counseling, 16, 107-118.
Westling, D. L. (1997). What parents of young children
with mental disabilities want: the views of one
community. Focus on Autism and Other Developmental
Disabilties, 12, 67-78.
Whemeyer, M. L. & Obremski, S. (2010). Intellectual
u Constantinos Vouyoukas, Maria Tzouriadou, Georgios Menexes, Maria Geka and Lito-Eleni Michalopoulou
disabilities. Available at: http://cirrie.buffalo.edu/
encyclopedia/en/article/15/ (accessed 22 September
.
Wong, S.y., Wong, T.k.S., Martison, I., Lai, A.c.,
chen,W.J., & he, y.S. (2004). needs of chinese
parents of children with developmental disability.
Journal of Learning Disabilities, 8, 141-158.
Wulffaert, J., Van Berckelaer-Onnes, I., kroonenberg,
P., Scholte, E., Bhuiyan, z. & hennekam, R.
(2009). Simultaneous analysis of the behavioural
phenotype, physical factors, and parenting stress
in people with cornelia de Lange syndrome. Journal
of Intellectual Disability Research, 53, 604-619.
ysseldyke, J.E. (1987). classification of handicapped
students. Handbook of Special Education: Research
and Practice, 1, 253-271.
