Students with autism spectrum disorder in higher education: Difficulties and support practices


Published: Jul 4, 2018
Keywords:
Autism spectrum disorder students higher education supportive practices and accommodations
Αγλαϊα Σταμπολτζή
https://orcid.org/0000-0002-8605-5429
Ράνυ Καλούρη
https://orcid.org/0000-0003-4996-2326
Ελισάβετ Τσίτσου
Abstract

Autism Spectrum Disorder (ASD) is a lifelong neurodevelopmental condition. The incidence of ASD is rising impressively during the last decades. Within the autism spectrum, there is a large number of students with “special abilities”, above average or high intelligence and good academic prospects. A large number of these students moves to higher education, in order to pursue their personal and academic goals. The purpose of this paper is to present the basic characteristics of university students with ASD, the difficulties and obstacles they encounter at university, as well as effective ways of supporting them in higher education. The literature review was conducted through the electronic databases ProQuest, Eric and Sage Journals where specific inclusion criteria had been set for articles, reports and theses. The main outcomes of the studies have several similarities irrespective of the country of origin of the studies. Students with ASD meet emotional, practical, social, communicative and sensory challenges in higher education. One key conclusion is that some of the traditional support methods used for students with special educational needs are not suitable for students with autism who needs personalized support based on their unique needs. Personnel of counselling or disability centres should offer appropriate accommodations to support academically and emotionally students on the autistic spectrum, taking into account the context of the institution and the large variability between students with ASD. Finally, universities have to benefit from the "special abilities" of these students and also enrich their knowledge of "diversity".

Article Details
  • Section
  • Articles
Downloads
Download data is not yet available.
Author Biographies
Αγλαϊα Σταμπολτζή, Pedagogical Department, ASPETE
Ε.ΔΙ.Π Παιδαγωγικό Τμήμα, Α.Σ.ΠΑΙ.Τ.Ε
Ράνυ Καλούρη, Pedagogical Department, ASPETE
Καθηγήτρια
References
Adreon, D. & Durocher, S. (2007). Evaluating the college transition needs of individuals with high functioning autism disorders. Intervention in School and Clinic, 42 (5), 271-279. DOI: 10.1177/10534512070420050201
American Psychiatric Association. (2000). Diagnostic and statistical manual of mental disorders: DSM-IV-TR (4th ed., text revision). Washington, DC: Author.
American Psychiatric Association. (2013). Diagnostic and statistical manual of mental disorders (5th ed.). Washington, DC: Author.
Attwood, T. (1998). Asperger’s syndrome. London: Jessica Kingsley.
Attwood, T. (2007). Relationship problems of adults with Asperger’s syndrome. Good Autism Practice 8, 13-19.
Baird, G., Simonoff, E., Pickles, A., Chandler, S., Loucas,T., Meldrum, D. & Charman,T. (2006). Prevalence of disorders of the autism spectrum in a population cohort of children in South Thames: the Special Needs and Autism Project (SNAP). Lancet, 368, 210-215.
Baron-Cohen, S., Scott, F., Allison, C., Williams, J., Bolton, P., Matthews, F. & Brayne, C. (2009). Prevalence of autism spectrum conditions: UK school-based population study. The British Journal of Psychiatry, 194, 500-509. doi: 10.1192/bjp.bp.108.059345
Boratynec, Z. (χ.η). Supporting college students with Asperger syndrome. A Sabbatical report. Counselor, Special Services: Saddleback College.
Γιαννάρου Λ. (2014). Φοιτητές με Άσπεργκερ-Θέλουν επαφή αλλά δε ξέρουν πώς. Καθημερινή, 06/03/2014 Ανάκτηση από: http://www.kathimerini.gr/756748/article/epikairothta/episthmh/foithtes-me-aspergker---8eloyn-epafh-alla-den-3eroyn-pws.
Center for Disease Control (2007). CDC releases new data on Autism Spectrum. Disorders (HFA OR ASs) from multiple communities in the United States. Ανάκτηση από: http://www.cdc.gov/od/oc/media/pressrel/2007/r070208.htm (12/12/2007).
Center for Disease Control (2014). Autism and Developmental Disabilities Monitoring Network Surveillance Year 2010 Principal Investigators. Prevalence of autism spectrum disorder among children aged 8 years- Autism and Developmental Disabilities Monitoring Network, 11 sites, United States, 2010. MMWR Surveillance Summaries 2014; 63(No. SS-2). Atlanta, GA: Centers for Disease Control and Prevention.
Cooper, K.L & Hanstock, T.L. (2009). Confusion between depression and autism in a high-functioning child. Clinical case studies, 8(1), 59-71. doi:10.1177/1534650108327012
Digest of Education Statistics (2009). Table 240. Number and percentage distribution of students enrolled in postsecondary institutions, by level, disability status, and selected student characteristics: 2003–04 and 2007–08. Ανάκτηση από http://nces.ed.gov/programs/digest/d10/tables/dt10_240.asp (04/10/2013).
Farrell, E. F. (2004, 8 Οκτωβρίου). Asperger's confounds colleges. Chronicle of Higher Education, pp. A35-A36.
Filler, C. & Rosenhein, M. (2012). IEP transition components: Transition to adulthood. Guidelines for individuals with autism spectrum disorders. Ανάκτηση από http://www.ocali.org/up_doc/TG12_IEPComponents.pdf
Ford, C.D. (2009). An investigation of support programs for college students with high functioning autism or Asperger syndrome. Unpublished doctoral dissertation. University of Missouri-Columbia.
Glenon, T.J. (2001). The stress of the university experience for students with Asperger syndrome. Work, 17, 183-190.
Grant, R. & Nozyce, M. (2013). Proposed changes to the American Psychiatric Association diagnostic criteria for autism spectrum disorder: Implications for young children and their families. Maternal Child Health Journal, 17, 586-592. DOI 10.1007/s10995-013-1250-9
Gutstein, S. E., & Whitney, T. (2002). Asperger Syndrome and the development of social competence. Focus on Autism & Other Developmental Disabilities, 17(3), 161-172. doi:10.1177/10883576020170030701
Harrison, J. & Hare, D.J. (2004). Brief report: assessment of sensory abnormalities in people with autistic spectrum disorders. Journal of Autism and Developmental Disorders, 34 (6), 727-730.
Harpur, J., Lawlor, M & Fitzgerald, M. (2004). Succeeding at college with Asperger syndrome. London: Jessica Kingsley.
Hastwell, J., Harding, J., Martin, N. & Baron-Cohen, S. (2013). Asperger syndrome student project, 2009-12 (Final project report). Disability Resource Centre: University of Cambridge.
Higher Education Statistical Agency (2012) Ανάκτηση από http://www.hesa.ac.uk/ (04/10/2013).
Howley, M. (χ.η ). Asperger’s Syndrome in further and higher education students. Ανάκτηση από: http://www.brainhe.com (02/10/2013)
Howlin, P. (2004) Autism and Asperger Syndrome: preparing for adulthood. (2nd ed.). London: Routledge.
Hughes, C., Golas, M., Cosgriff, J., Brigham, N., Edwards, C., & Cashen, K. (2011). Effects of a social skills intervention among high school students with intellectual disabilities and autism and their general education peers. Research and Practice for Persons with Severe Disabilities, 36 (1), 46–61. doi: 10.2511/rpsd.36.1-2.46
Hurst, D. & Smerdon, B. (2000). Postsecondary students with disabilities: Enrollment, services, and persistence. Education Statistics Quarterly, 2 (3), 55-58.
Jabr, F. (2012). Redefining Autism: Will New DSM-5 Criteria for ASD Exclude Some People? Ανάκτηση από: http://www.scientificamerican.com/article.cfm?id=autism-new-criteria (20/10/2014).
Jamieson, J. & Jamieson, C. (2004). Managing Asperger syndrome at college and university: A resource for students, tutors and support services. London: David Fulton Publishers.
Kim, J. A., Szatmari, P., Bryson, S. E., Streiner, D. L. & Wilson, F. (2000). The prevalence of anxiety and mood problems among children with autism and Asperger Syndrome. Autism, 4 (2), 117-132. doi:10.1177/1362361300004002002
Knott, F. & Taylor, A. (2014). Life at university with Asperger syndrome:a comparison of student and staff perspectives. International Journal of Inclusive Education, 18 (4), 411-426, DOI: 10.1080/13603116.2013.781236
Langford, S.J.,Zakrajsek, T. & Pletcher-Rood, S. (2008). Teaching students with Asperger syndrome (and other disabilities) in the college classroom: Creating an inclusive learning environment. Journal on Excellence in College Teaching, 19 (2-3), 107-133.
Lawrence, D. H., Alleckson, D.A. & Bjorklund, P. (2010). Beyond the roadblocks: Transitioning to adulthood with Asperger’s syndrome. Archives of Psychiatric Nursing, 24(4), 227-238. DOI: http://dx.doi.org/10.1016/j.apnu.2009.07.004
Μαγνήσαλης, Σ., Σαγιά, Σ. & Νότας, Σ. (χ.η). Τι σημαίνουν οι αλλαγές στα διαγνωστικά κριτήρια που επιφέρει το DSM-5; Ανάκτηση από: https://autismhellas.gr/wp-content/uploads/2018/03/DSM-V_%CE%95%CE%A1%CE%A9%CE%A4%CE%97%CE%A3%CE%95%CE%99%CE%A3.pdf (05/05/2017)
Mesibov, G B, Shea, V and Schopler, E (2005) The TEACCH Approach to Autism Spectrum Disorders. New York: Plenum Press.
Νότας, Σ. & Νικολαΐδου, Μ. (2006). Αυτισμός-Διάχυτες Αναπτυξιακές Διαταραχές: Ολιστική διεπιστημονική προσέγγιση. Αθήνα: Βήτα.
Özerk (2016). The issue of prevalence of autism/ASD. International Electronic Journal of Elementary Education, 9(2), 263-306.
Pillay, Υ. & Suniti Bhat, C. (2012) Facilitating support for students with Asperger's Syndrome. Journal of College Student Psychotherapy, 26 (2), 140-154. DOI: 10.1080/87568225.2012.659161
Schlabach, T. (2008). The college experience of students with Asperger’s disorder: Perceptions of the students themselves and of college disability service providers who work with these students. Unpublished doctoral dissertation. Illinois State University.
Smith, C. (2007). Support services for students with Asperger’s syndrome in higher education. College Student Journal, 41(3), 515-531.
Σοφιανίδου. Ε., Μπακομήτρου, Φ. & Καλαντζή-Αζίζι, Α. (επιμ.) (2005). Πανεπιστήμιο για Όλους: Όροι και προϋποθέσεις πλήρους ένταξης των φοιτητών με αναπηρία στην ακαδημαϊκή ζωή. Πανεπιστήμιο Αθηνών: αυτοέκδοση.
Σταμπολτζή Α. & Γιαννάκης, Π. (2014). Η χρήση του διαδικτύου και των μέσων κοινωνικής δικτύωσης από άτομα στο φάσμα του αυτισμού. i-teacher, 9, 128-139.
Swedo, S. E. (2012). An update on the DSM-5 recommendations for autism spectrum disorder and other neurodevelopmental disorders. Ανάκτηση από: http://iacc.hhs.gov/events/2012/slides_susan_swedo_071012.pdf (07/02/2013).
Taylor, M.J. (2005). Teaching students with autistic spectrum disorders in HE. Education & Training, 47 (7), 484-495. http://dx.doi.org/10.1108/00400910510626330
Test, D., Mazzoti, V., Mustian, A., Fowler, C., Kortering, L. & Kohler, P. (2009). Evidence-based practices in secondary transition. Career Development and Transition For Exceptional Individuals, 32(2), 115-128. doi: 10.1177/0885728809336859
Thomas, J., & Harden, A. (2008). Methods for the thematic synthesis of qualitative research in systematic reviews. BMC Medical Research Methodology, 8, 45. doi: 10.1186/1471-2288-8-45.
Tsai, L. Y. (2003). Pervasive developmental disorders. Briefing paper. National Dissemination Center for Children with Disabilities. Ανάκτηση από: http://nichcy.org/wp-content/uploads/docs/fs20.pdf (11/10/2012)
Wehman, P. (2006). Life beyond the classroom: Transition strategies for young people with disabilities (4th ed.). Baltimore: Paul Brooks Publishing Co.
White, S.W., Ollendick, T.H. & Bray, B.C (2011). College students on the autism spectrum: prevalence and associated problems. Autism, 15 (6), 683-701. doi: 10.1177/1362361310393363
Wolf, L. E., Thierfeld Brown, J., & Kukiela Bork, G. R. (2009). Students with Asperger syndrome: A guide for college personnel. Overland Park, KS: Autism Asperger Publishing Company.
Most read articles by the same author(s)