Psychological Burden in Female Caregivers of Patients with Dementia and Associated Behavioral and Emotional Problems, during COVID-19 Pandemic Restrictions
Δημοσιευμένα:
may 23, 2024
Περίληψη
This study explores the impact of the COVID-19 pandemic on female caregivers of dementia patients, delving into their experiences before and after the pandemic. Contrary to expectations, the findings reveal that caregiver burden did not significantly increase post-pandemic. The study focuses on Greek female caregivers of dementia patients with behavioral and psychological symptoms associated with neurocognitive disorders, navigating the intersection of the pandemic and the ongoing challenge of dementia, emphasizing the vulnerability of older adults with dementia during COVID-19. Specifically, the study investigates the psychological burden on female caregivers, often spouses or daughters, and explores the relationship between caregiver burden and death anxiety. Surprisingly, the results show no significant correlation between caregiver burden and death anxiety during the pandemic. The study underscores the need for additional support strategies for caregivers and emphasizes the importance of considering diverse cultural contexts in understanding caregiving experiences during crises. Overall, the research contributes valuable insights into the complex dynamics faced by female caregivers in the context of dementia and the COVID-19 pandemic.
Λεπτομέρειες άρθρου
- Πώς να δημιουργήσετε Αναφορές
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Σωπίδου Κ., Μωραΐτου Δ., Τσολάκη Μ., & Παπαντωνίου Γ. (2024). Psychological Burden in Female Caregivers of Patients with Dementia and Associated Behavioral and Emotional Problems, during COVID-19 Pandemic Restrictions. Επιστημονική Επετηρίδα Παιδαγωγικού Τμήματος Νηπιαγωγών Πανεπιστημίου Ιωαννίνων, 17(1), 38–54. https://doi.org/10.12681/jret.35746
- Τεύχος
- Τόμ. 17 Αρ. 1 (2024):
- Ενότητα
- Άρθρα
Αυτή η εργασία είναι αδειοδοτημένη υπό το CC Αναφορά Δημιουργού – Μη Εμπορική Χρήση – Παρόμοια Διανομή 4.0.
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Λήψεις
Τα δεδομένα λήψης δεν είναι ακόμη διαθέσιμα.
Αναφορές
Adelman, R. D., Tmanova, L. L., Delgado, D., Dion, S., & Lachs, M. S. (2014). Caregiver burden: A clinical review. JAMA, 311(10), 1052e1060.
Alves, G. S., Casali, M. E., Veras, A. B., Carrilho, C. G., Bruno Costa, E., Rodrigues, V. M., & Dourado, M. (2020). A Systematic Review of Home-Setting Psychoeducation Interventions for Behavioral Changes in Dementia: Some Lessons for the COVID-19 Pandemic and Post-Pandemic Assistance. Frontiers in psychiatry, 11, 577871.
Alzheimer's Disease International. 2019. World Alzheimer Report 2019: Attitudes to dementia. London: Alzheimer's Disease International.
Andreakou, M. I., Papadopoulos, A. A., Panagiotakos, D. B., & Niakas, D. (2016). Assessment of Health-Related Quality of Life for Caregivers of Alzheimer’s Disease Patients. International Journal of Alzheimer’s Disease, 2016, 9213968.
Andrén, S., & Elmståhl, S. (2008). The relationship between caregiver burden, caregivers' perceived health, and their sense of coherence in caring for elders with dementia. Journal of Clinical Nursing, 17(6), 790–799.
Armstrong, M. J., Gamez, N., Alliance, S., Majid, T., Taylor, A., Kurasz, A. M., Patel, B., & Smith, G. (2020). Research priorities of caregivers and individuals with dementia with Lewy bodies: An interview study. PloS one, 15(10), e0239279.
Bachner, Y. G., O'Rourke, N., & Carmel, S. (2011). Fear of death, mortality communication, and psychological distress among secular and religiously observant family caregivers of terminal cancer patients. Death Studies, 35(2), 163-187.
Borelli, W. V., Augustin, M. C., de Oliveira, P. B. F., Reggiani, L. C., Bandeira-de-Mello, R. G., Schumacher-Schuh, A. F., Chaves, M. L. F., &
Castilhos, R. M. (2021). Neuropsychiatric symptoms in patients with dementia associated with increased psychological distress in caregivers during the COVID-19 pandemic. Journal of Alzheimer’s Disease, 80 (4), 1705–1712.
Borg, C., Rouch, I., Pongan, E., Getenet, J. C., Bachelet, R., Herrmann, M., Bohec, A.-L., Laurent, B., Rey, R., & Dorey, J.-M. (2021). The mental health of people with dementia during COVID-19 pandemic: What have we learned from the first wave? Journal of Alzheimer’s Disease, 82 (4), 1531–1541.
Boutoleau-Bretonniere C, Pouclet-Courtemanche H, Gillet ` A, Bernard A, Deruet A-L, Gouraud I, Lamy E, Mazoue´ A, Rocher L,
Bretonniere C, El Haj M (2020) Impact ` of confinement on the burden of caregivers of patients with the behavioral variant of frontotemporal dementia and Alzheimer disease during the COVID-19 crisis in France. Dement Geriatr Cogn Disord Extra 10, 127-134.
Brown, E. E., Kumar, S., Rajji, T. K., Pollock, B. G., & Mulsant, B. H. (2020). Anticipating and mitigating the impact of the COVID-19 pandemic on Alzheimer's disease and related dementias. The American Journal of Geriatric Psychiatry, 28(7), 712-721.
Canevelli, M., Valletta, M., Blasi, M. T., Remoli, G., Sarti, G., Nuti, F., ... & Bruno, G. (2020). Facing dementia during the COVID‐19 outbreak. Journal of the American Geriatrics Society, 68(8), 1673.
Carpinelli Mazzi, M., Iavarone, A., Musella, C., De Luca, M., de Vita, D., Branciforte, S., Coppola, A., Scarpa, R., Raimondo, S., Sorrentino, S., Lualdi, F., & Postiglione, A. (2020). Time of isolation, education and gender influence the psychological outcome during COVID-19 lockdown in caregivers of patients with dementia. European geriatric medicine, 11(6), 1095–1098.
Cheng, S. T. (2017). Dementia Caregiver Burden: a Research Update and Critical Analysis. Current psychiatry reports, 19(9), 64.
Chien, L. Y., Chu, H., Guo, J. L., Liao, Y. M., Chang, L. I., Chen, C. H., & Chou, K. R. (2011). Caregiver support groups in patients with dementia: a meta-analysis. International journal of geriatric psychiatry, 26(10), 1089–1098.
Cohen, G., Russo, M. J., Campos, J. A., & Allegri, R. F. (2020b). Living with dementia: Increased level of caregiver stress in times of COVID-19. International Psychogeriatrics, 32 (11), 1377–1381.
Colombo, F., et al. (2011), Help Wanted?: Providing and Paying for Long-Term Care, OECD Health Policy Studies, OECD Publishing, Paris.
Conte, H. R., Weiner, M. B., & Plutchik, R. (1982). Measuring death anxiety: Conceptual, psychometric, and factor-analytic aspects. Journal of Personality and Social Psychology, 43(4), 775–785.
Cummings, J. L., Mega, M., Gray, K., Rosenberg-Thompson, S., Carusi, D. A., & Gornbein, J. (1994). The Neuropsychiatric Inventory: comprehensive assessment of psychopathology in dementia. Neurology, 44(12), 2308–2314.
Daley, S., Murray, J., Farina, N., Page, T. E., Brown, A., Basset, T., Livingston, G., Bowling, A., Knapp, M., & Banerjee, S. (2019). Understanding the quality of life of family carers of people with dementia: Development of a new conceptual framework. International journal of geriatric psychiatry, 34(1), 79–86.
Damirchi, E. S., Mojarrad, A., Pireinaladin, S., & Grjibovski, A. M. (2020). The role of self-talk in predicting death anxiety, obsessive-compulsive disorder, and coping strategies in the face of coronavirus disease (COVID-19). Iranian journal of psychiatry, 15(3), 182.
Etters, L., Goodall, D., & Harrison, B. E. (2008). Caregiver burden among dementia patient caregivers: A review of the literature. Journal of the American Academy of Nurse Practitioners, 20(8), 423–428.
Fauth, E. B., & Gibbons, A. (2014). Which behavioral and psychological symptoms of dementia are the most problematic? Variability by prevalence, intensity, distress ratings, and associations with caregiver depressive symptoms. International journal of geriatric psychiatry, 29(3), 263-271.
Fortner, B. V., & Neimeyer, R. A. (1999). Death anxiety in older adults: a quantitative review. Death studies, 23(5), 387–411.
Greenberg, N.E., Wallick, A., Brown L.M. (2020). Impact of COVID-19 pandemic restrictions on community-dwelling caregivers and persons with dementia. Psychological Trauma: Theory, Research, Practice, and Policy, 12(S1), S220-S221.
Hébert, R., Bravo, G., & Préville, M. (2000). Reliability, validity and reference values of the Zarit Burden Interview for assessing informal caregivers of community-dwelling older persons with dementia. Canadian Journal on Aging/La Revue canadienne du vieillissement, 19(4), 494-507.
Kalokairinou-Anagnostopoulou, A., & Alevizopoulos, G. (2006). The reliability and validity of the burden scale (Zarit burden interview) in Greek Cypriot caregivers of patients with dementia. Nursing.
Kolanowski, A., Boltz, M., Galik, E., Gitlin, L. N., Kales, H. C., Resnick, B., ... & Scerpella, D. (2017). Determinants of behavioral and psychological symptoms of dementia: A scoping review of the evidence. Nursing outlook, 65(5), 515-529.
Liu, Z., Heffernan, C., & Tan, J. (2020). Caregiver burden: A concept analysis. International journal of nursing sciences, 7(4), 438–445.
Maseda A, Gonzalez-Abraldes I, de Labra C, Marey-Lopez J, Sanchez A, Millan-Calenti JC. Risk factors of high burden caregivers of dementia patients institutionalized at day-care centres. Community Ment Health J 2014; 51: 753–9.
Menzies, R. E., & Menzies, R. G. (2020). Death anxiety in the time of COVID-19: Theoretical explanations and clinical implications. The Cognitive Behaviour Therapist, 13, e19.
Neimeyer, R. A., Wittkowski, J., & Moser, R. P. (2004). Psychological research on death attitudes: An overview and evaluation. Death studies, 28(4), 309-340.
Novais, T., Dauphinot, V., Krolak-Salmon, P., & Mouchoux, C. (2017). How to explore the needs of informal caregivers of individuals with cognitive impairment in Alzheimer's disease or related diseases? A systematic review of quantitative and qualitative studies. BMC geriatrics, 17(1), 86.
Nunes, P. V., Schwarzer, M. C., Leite, R. E. P., Ferretti-Rebustini, R. E. D. L., Pasqualucci, C. A., Nitrini, R., ... & Suemoto, C. K. (2019).
Neuropsychiatric inventory in community-dwelling older adults with mild cognitive impairment and dementia. Journal of Alzheimer's Disease, 68(2), 669-678.
Özgüç, S., Kaplan Serin, E., & Tanriverdi, D. (2021). Death anxiety associated with coronavirus (COVID-19) disease: A systematic review and meta-analysis. OMEGA-Journal of Death and Dying, 00302228211050503.
Özyürek, A., & Atalay, D. (2020). COVID-19 pandemisinde yetişkinlerde yaşamin anlami ve ölüm kaygisi ile iyilik hali arasindaki ilişkinin incelenmesi. TURAN: Stratejik Arastirmalar Merkezi, 12(46), 458-472.
Pinquart M, Sörensen S. Helping caregivers of persons with dementia: which interventions work and how large are their effects? Int Psychogeriatr. 2006;18(4):577-595.
Pinquart M, Sorensen S. Spouses, adult children, and children-in-law as caregivers of older adults: a meta-analytic comparison. Psychol Aging 2011; 26: 1– 14.
Polemikou, A., & Vantarakis, S. (2019). Death anxiety and spiritual intelligence as predictors of dissociative posttraumatic stress disorder in Greek first responders: A moderation model. Spirituality in Clinical Practice, 6(3), 182.
Politis, A. M., Mayer, L. S., Passa, M., Maillis, A., & Lyketsos, C. G. (2004). Validity and reliability of the newly translated Hellenic Neuropsychiatric Inventory (H‐NPI) applied to Greek outpatients with Alzheimer's disease: a study of disturbing behaviors among referrals to a memory clinic. International Journal of Geriatric Psychiatry, 19(3), 203-208.
Pongan, E., Dorey, J. M., Borg, C., Getenet, J. C., Bachelet, R., Lourioux, C., ... & COVCARE Group. (2021). COVID-19: Association between increase of behavioral and psychological symptoms of dementia during lockdown and caregivers’ poor mental health. Journal of Alzheimer's Disease, 80(4), 1713-1721.
Rigby, T., Ashwill, R. T., Johnson, D. K., & Galvin, J. E. (2019). Differences in the experience of caregiving between spouse and adult child caregivers in dementia with Lewy bodies. Innovation in aging, 3(3), igz027.
Semenova & Stadtlander, 2016 Journal of Social, Behavioral, and Health Sciences 37.
Shahid, Z., Kalayanamitra, R., McClafferty, B., Kepko, D., Ramgobin, D., Patel, R., ... & Jain, R. (2020). COVID‐19 and older adults: what we know. Journal of the American Geriatrics Society, 68(5), 926-929.
Sharma, N., Chakrabarti, S., & Grover, S. (2016). Gender differences in caregiving among family-caregivers of people with mental illnesses. World journal of psychiatry, 6(1), 7.
Simonetti A, Pais C, Jones M, Cipriani MC, Janiri D, Monti L, Landi F, Bernabei R, Liperoti R, Sani G. Neuropsychiatric Symptoms in Elderly With Dementia During COVID-19 Pandemic: Definition, Treatment, and Future Directions. Front Psychiatry. 2020 Sep 29;11:579842.
Triantafillou T., Mestheneou E., Pruskas K., Goltsi P., Kontouka S., & Loukisis A. (2006). The family caring for dependent elderly people, Pan-Hellenic survey Eurofamcare, Greek report summary, Athens.
Vaitheswaran, S., Lakshminarayanan, M., Ramanujam, V., Sargunan, S., & Venkatesan, S. (2020). Experiences and needs of caregivers of persons with dementia in India during the COVID-19 pandemic—A qualitative study. The American journal of geriatric psychiatry, 28(11), 1185-1194.
Wang, H., Li, T., Barbarino, P., Gauthier, S., Brodaty, H., Molinuevo, J. L., ... & Yu, X. (2020). Dementia care during COVID-19. The Lancet, 395(10231), 1190-1191.
Yalom, I. D., & Lieberman, M. A. (1991). Bereavement and heightened existential awareness. Psychiatry, 54(4), 334-345.
Zarit SH. Concepts and measures in family care giving research. Paper presented at the conference on Conceptual and Methodological Issues in Family Caregiving Research, University of Toronto, 1990.
Zarit, S. H., Reever, K. E., & Bach-Peterson, J. (1980). Relatives of the impaired elderly: Correlates of feelings of burden. The Gerontologist, 20(6), 649-655.
